Background
There is no evidence-based anti-inflammatory treatment for ARF and no published randomized trial evidence since 20011,2, highlighting evidence gaps and underfunding of ARF research relative to global burden. Hydroxychloroquine has been used for decades to treat autoimmune disorders, is inexpensive with well-established safety. In vitro data suggests disease-modifying potential in ARF.3
Methods
We conducted a non-randomized, open-label feasibility and safety pilot of hydroxychloroquine 5-7mg/kg/day, maximum 400mg, for 4-6 weeks in Auckland, NZ, 2021-2023. Children with ARF and carditis were recruited. Standard management included benzathine penicillin and non-steroidal anti-inflammatory drugs. Primary outcome was hydroxychloroquine discontinuation due to QTc prolongation or arrhythmia. Secondary outcomes included carditis grade at 6 months, left ventricular ejection fraction, need for surgery.
Results
22 children (6-15yrs) were enrolled: carditis grade mild (8), moderate (6), severe (8). All received hydroxychloroquine. There was no ventricular tachycardia or significant QTc prolongation >500ms and no myocardial depression.
Conclusion
Recruitment into an ARF intervention trial is feasible in NZ. Findings will inform a future adaptive platform trial, with planned Australian and global collaboration. Advantages of an adaptive platform design include ability to evaluate multiple new and repurposed immunomodulators in different domains and combinations. Interventions and outcomes will be informed by recent ARF cohort studies. Hydroxychloroquine, steroids and tocilizumab are proposed initial interventions. Ordinal (graded) echocardiographic outcome measures will be assessed. The enduring platform infrastructure, flexibility for sites to choose which domains they participate in, and a web-based software platform will foster global participation, and we invite interested colleagues to collaborate.